"Juliana Snow was a young girl who was born with the neuromuscular disease that is incurable. She recently passed away and according to her parents and medical officials it was snows choice. Her parents asked still whether or not she would want to go to the hospital or stay at home of anything dramatic happen to her metically, Snow told them she wanted to stay home. Many believe this to be too difficult of a decision to be made by a five year old, her parents and doctors disagree. Art Caplan, the director of the division of medical ethics at New York University School of Medicine stated she taught me that even a child can convey remarkable feelings about her illness."
Julianna Snow, a 5-year-old girl with a deadly illness, is opting for heaven over being on a respirator in a hospital enduring endless treatments. Snow has never been well enough to attend Sunday school at the City Bible Church in Portland, Ore. She's heard all about heaven from her parents and sees no reason to fight what doctors have diagnosed as a near-hopeless medical condition.
The young girl is likely to die sooner than later due a severe case of an incurable neurodegenerative illness, known as Charcot-Marie-Tooth disease, WPTV reports on October 28. If Julianna Snow even gets an infection, she's likely to wind up with deadly pneumonia because her lungs are too weak to withstand coughing or hard breathing. She could end up on a respirator with a very low quality of life.
Michelle Moon and Steve Snow have explained to their daughter that when she goes to heaven, they won't be there yet -- nor will her brother, Alex. Julianna wants to skip the hospital suffering and go to heaven where she understands that her great-grandmother is at. She also understands that when she gets there, she can do all of the things she currently can't do now ... like playing and eating normally.
Julianna Snow's parents asked her at the age of four if she would be willing to go to the hospital the next time she gets severely sick or would she want to stay home where she'd die in peace. The 5-year-old said she doesn't want to go the hospital because she wants to be in the comfort of her own home before she goes to "heaven."
Julianna's mother had looked online at guidance about end-of-life talks with a girl her age. Michelle Moon wrote an email to CNN and explained the gravity of all the thought that went behind this decision, saying: "Very clearly, my 4-year-old daughter was telling me that getting more time at home with her family was not worth the pain of going to the hospital again. I made sure she understood that going to heaven meant dying and leaving this Earth. And I told her that it also meant leaving her family for a while, but we would join her later. Did she still want to skip the hospital and go to heaven? She did."
I don't like dying.
Our sweet Julianna went to heaven today, I am stunned and heartbroken, but also thankful. I feel like the luckiest mom in the world, for God somehow entrusted me with this glorious child, and we got almost six years together.
She was a remarkable little girl, she taught me and others that even a child can become very knowledgeable about a challenging illness and can convey thoughtful and remarkable feelings about her illness and her ideas.
Please do not forget her, She lived, she was real, and she mattered. Her mind was always going. She took us to a beautiful place without limits, She encouraged us to be our most colorful and fabulous self.
She fought hard to be here, harder than I've seen anyone fight, with a body that was too frail for this world. She was so brave -- and I hated that she had to be so brave,
Today she is free. Our sweet Julianna is finally free.
What do you think of Julianna Snow making her own mind up about her life and how it ends?